Recent content by yelflowhunter

Dear Bibi, I have written a pm to you. You know I cramp a lot, sometimes. I have months with extreme cramping in toes and calves but after a period of cramping weeks, I have also weeks without cramping. The more I worry, the more I cramp. Cramping is a common part of BFS. I have cramps in toes...

I have to say thank you to all they have answered my cry for help in the meanwhile. Thank you guys for your words. It is so extreme to deal with that condition, i wish it gets better one day...

Dear Docen, thank you so much for your reassuring and also realistic explanations realated to my symptoms in your pm! I am thankful that you spent your time as the only one! of a lot of viewers of my post, to talk with me about my so frightening symptoms. It is so important for any anxious and...

Dear Twitchydoc, thank you for not being silent. Yes, Isaac Syndrom, Stiff man syndrome etc. were mentioned, but I have no wave-like fasciculations, the doctors could see them. And have not the potassium-channel antobodies, they were tested. So they do not think that it is something like that...

Hi all, now I am one year into this. I have tried to make a break from the forum because I am so anxious if I read some stories. And I htave realised that my case is special. My twitches and cramps in calves and feet are extrem. I can only sleep for a few hours with them, than they wake me up...

ok I understand. Sorry, my panic is sometimes out of control.

I have visited 3 specialized neuromusculare centers in Emilyomousey because my twitches get worse over the last 12 months. Not better, not a bit. The doctors told me the following things regarding to twitching: Twitching without clinical weakness is no sign of MND. Fazciculations on the EMG is...

Dear I am really scared once more. German, I am happy for you, that you do not have any evidence pointed to MND! It has been ruled out to 100% from the Emilyomouse main expert in that field.But my problem ist now: They ruled ALS out because there are not any twitches to show?? I have read a lot...

Thank you Pascal, is your twitching also more worse than in the beginning?

Thank you Yulia, I needed to hear that! Thanks.

Dear SparkleKid, thank you!!! I had bad days and weeks behind me and unfortunately I had read today, unvoluntarily, the wrong things... Thank you for your words.

Hi all, is it a bad sign if twitches gets more and more worse over a couple of months. I am twitching since 11 months, since march my twitches gets worse in feet and calves up to now... Any words for reassuring? Please... because I do not know how to manage my weekend now... Thank you so much.

Thank you Gary. One of the neuros I have visited (neuromusculare specialist) told me that people with bfcs sometimes develop mild chronical musculare changes over the years, measurable by emg or muscle biopsy. He told me that this means nothing bad, that do not means NMD! This people do not...

any opinions from anyone? Is that correct, what the neuro have told me? Thank you.

I have asked one of the neuromusculare specialists, what is about cases where patients develop als after 4 or 5 years twitching and cramping. He said, that he think, that those patients are part of the 70-80% of thenormal healthy population who twitch in a normal range... He said that these...