Recent content by tripleytaps

Hi. I haven't been here in years. I got BFS in 2009 and it took me about a year to get ok with it and not think I was dying. This forum was so helpful for that. Well here I am again. In the last few days, five to be exact, I started getting sweeping goosebumps on my left leg. It started after a...

I have had all those symptoms. After I went to the doctor and my white blood cell count was getting lower and I explained all my symptoms he said, "you are a moron" "There is nothing wrong with you".....eventually they all magically went away. I know you will be fine.

Agreed! May 10 is my one year anniversary and all I can think is,I'm ok...thank God! The scary thing that the newbies get caught up in is, "Holy Cow, my body is changing and I do not know where it will end." That is the scary thing...new symptoms continue to crop up and I don't know what is...

Mine actually feels like it is on the skin...like a sunburn. In other words, I may not feel it until I push my arms back and the skin bunches up. Weird.

Hi...I haven't been on in a few months...been trying to kick the habit!!I have been pretty good with my symptoms, but just recently got a really weird one. WOULD LOVE TO KNOW IF ANYONE ELSE GETS THIS!:This past week I get this sensation on my shoulder blade. It is as though someone put Icy/Hot...

Peter, my test results were back to me the day I had the tests. If you are in Denmark, I am sure the system is different there, but in general, when something is wrong, they call you right away. No news is good news. I am sure you are fine. I am literally sure you are fine. As they say, no one...

You don't have MS, or anythign else like that. I had the same problems with my eyelids and cheeks and everywhere else. I even had the biggest one I've ever had a few weeks ago. One morning, a huge muscle in my back/shoulder blade was moving my entire right arm as I sat at my desk. It had to be...

Hi, I am 8 months in and just noticed the same thing...sort of. I have a line on my face that goes from my temple area, down my cheekbone, to about my mouth that gets a weird, warm sensation every now and then. Kind of feels like I'm rubbing a pencil down my face. I see nothing on the...

Fiorebello - first of all, check your messages. I sent you a message and I hope it helps.Second of all, you are lik emost of us. One thing led you to the internet and now everything you feel is scary. I have a rule, "jerks" that you feel lying in bed do not count. We all have those at night as...

Since getting BFS, the frequency that my arms and legs go to sleep at night has increased tenfold. No idea why. But I wake up freaked out and then within 5 minutes, they are back to normal. Your nerves are going crazy and they want constant blood flow, so anything out of the norm makes them...

I actually showed mine how my thigh muscle twitched when I was half seated. He looked at it, put his hand on it, then dismissed it.

We all can relate. Right now the left side of my face feels warm. I have deep muscle twitches in random spots that only twitch once. Today, I feel like I have equilibrium issues, mostly because I woke up at 4 am. You have to get that disease out of your head. Frankly, it is ludicrous to believe...

sure do. Especially my fingers and my quad. In my quad, if I half sitting down, half standing up, when I look at it, it is going nuts. sometimes when I slightly tense my fingers, they start shaking. If I relax or really press, they stop. its like they don't like being half way used!

chiefgriz, I think you and I are in the exact same boat. I am 7 months in and I have the exact same fears/symptoms as you. We need to talk!

Nope. If you had MS, you would not be on here. Trust me.