Recent content by SipeNerd

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    Welcome Back! Seeking ALS Advice

    Hello BFSersI’m an old timer returning for some advice/reassurance. A little background on me: I’ve been twitching for about 14 years (33 yrs old). My twitches were widespread (including constant cramping /twitching in my feet and tongue). No weakness, maybe perceived at times/shakey arms and...
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    Weak Left Arm, ALS Worries

    thx for the reply, I recently saw the post about the lady having shoulder twitching and turned out to be something bad so that kinds freaked me out. I'm worried that I got my emg to early or that it's slowly developing into something. I'm unsure how long the results r good for and if the test...
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    Weak Left Arm, ALS Worries

    hello everyone, I'm typing this from a cell phone so I apologize for any mistakes made,For the past 5 days my left arm has become very weak, for example I find it hard to lift above my head or away from me. I try strength tests with weights but I don't notice any weakness there. I do have...
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    Jaw Tension, Popping & Twitching

    Sorry its how i feel and it makes me feel better when i can talk to people about it i apologize, thank you for your replies
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    Jaw Tension, Popping & Twitching

    My jaw has been feeling really stiff and weak lately. It makes a popping sound when i open it, i am really scared i may have bulbar-onset symptoms, my speech isnt slurred but my tongue does occasionally twitch along with the rest of my body. I know this kind of onset is very rare but everything...
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    My Hand Locking Up?

    I prob shouldn't ask this question but can als cause stuff like this?
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    My Hand Locking Up?

    Hello everyone,Something weird is going on with my hand, it feels as if my hand wants to close shut by itself (But it doesn't). Its only in my right hand, it seems like a tightening sensation like hard to open my hand up! My fingers will bend down by themselves sometimes but not all the way if...
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    Twitching After Movements: Concern?

    Sounds like you stole my body.. you can keep it
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    Buzzing Feeling in Calf Muscle

    I have had a buzzing feeling in my calf muscle, almost like a very fast twitch but its not a twitch? (if that makes any since) :whistle: for the past 2 days. I'm a regular here diagnosed with BFS and have the usual twitching, cramping, and soar muscles (I ordered the whole package) But never...
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    Widespread cramps!

    Has anyone ever experienced widespread cramping? For the past couple of days my BFS has been acting up bad and i have had cramps throughout the day in my hands, feet, and back. It seems like its a flare up of some sort but i guess the good part is its all over and not in just one area :confused:
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    Great Aunt Diagnosed with Illness

    I'm sorry to hear of your bad news, a loss in the family is always hard. At least she lived a long life before she was stricken with the disease. I can however offer you some helpful information. The majority of patients with adult-onset ALS (90%) have no family history of ALS, and present as an...
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    Left Hand Repetitive Movement Issue

    Hey guys, I posted about a week ago about my hand, i have another question, if i do repetitive movement in my left hand it seems to lock up and not want to respond (if that makes any sense) It does not feel like a cramp. I don't feel any weakness but if i do repetitive motion its hard to move my...
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    Trouble with hand

    anyone :(
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    Tongue Twitching Since 2005

    Val, We both seem to be suffering from the same issues, the odd of us both having *** are very slim! I'm 22 years old and i have had a EMG so if i have ALS i expect to also win the lottery very soon and get struck by lightning as im leaving the bank.. Also, i forgot to mention this to everyone...
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    Anxiety before BFS

    How many of you here suffered from moderate to severe anxiety before you "caught" BFS? Moderate - meaning that you didn't haft to seek medical help. (Example did not need a antidepressant or counseling) Severe - meaning anxiety often controlled your life and had to seek medical help (Example...
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