Recent content by RipleyGates

  1. R

    Symptom Management Strategies Discussion

    The amalgam theory is a myth. If it were true probably everybody on the planet would have BFS. My father had a mouth full of silver. he was never sick a day and lived to 86 (and he did'nt twitch) My mother is still alive at 82 (also does'nt twitch). I still stick by the unknown virus theory.
  2. R

    Twitching All Over - Help?

    Man! I wish I just twitched that much. We need to come up with a term for twitching all over "AND I MEAN ALL OVER" How about "FULL ONSET BFS" :unsure:
  3. R

    Frustrated by Lack of BFS Diagnosis

    I have had this Twice in my life It's a type of migraine my eye doctor diagnosed it as an "Ocullar Seclusion, With aura."
  4. R

    16yo Struggling with Muscle Twitching

    I agree, so there is good news, and there is bad news. The bad is your may have it for the rest of you're life, the good news is that the rest of you're life will probably be a very,very long time.
  5. R

    Bloodtest Confirms BFS Diagnosis

    Just an observation, If BFS progressed to ALS we would all be dead by now and there would be no reason for this site to even exist
  6. R

    Twitching, Tremors, and Aches

    I have been twitching for 13 years and it is definatley NOT normal, Just what it is I don't think any of us really know.
  7. R

    One Year of Twitching: Update

    As long as you can still vaccum, you can come to my place
  8. R

    Dealing with Twitch and Burning Sensations

    Zanax (alprozalam) is great , could be withdrawal, but I dont Know how much you take or when you stopped. Just a tip, If you still have any take a low dose at regular intervals and see how you feel. Never just stop this type of medication.
  9. R

    Living with Transverse Myelitis

    Outstanding I could not have said it better myself, and thats saying something
  10. R

    Annoying Hot Spots: Calf Twitching

    Most annoying hot spot :unsure: Just what the h**l is that :unsure: I have been twitching 24/7 for 13 years. Hot spot you. have got to be kidding me :crying:
  11. R

    Living with Transverse Myelitis

    You May get treated with respect, but you will go a long way and spend a lot of money to get the same diagnosis BFS.I am amazed at how far we will go with this when any decent neruo can properly diagnose our disorder, ALS or BFS or anything else. Just what are we looking for? Will we finally be...
  12. R

    3 Months of Twitching and Stiffness

    Hold on there little buddy :eek: You have major anxeity issues here, you must I repeat "MUST" find youself a good counsler Beleive me I know I have one.Take a deep breath. you sound like you've seen some good doctors. Now you must find a good therapist.
  13. R

    Hope for Those with PN: 2008 Post

    I have 13 years, No chance for me :(
  14. R

    My Body Went Mad Last Night

    I dont know your background but I do know if you lie awake in the middle of the night cataloging symptoms, there is definitley stress involved. Like I said I dont know your medical history. Pins and needles and numbness can be caused by hyperventilation. I know this because it used to happen to...
  15. R

    Experiencing Vibrations and Twitches?

    I am over the ALS fear. But haven't we figured this out yet :unsure: BFS is a hell in it'self How Bad for me :unsure: My wife has been great dealing with the stress this can put on a family for 13 years. Until now. She has to gone to her parents. There are other issues of course but there is...
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