Recent content by Redragon

Hi Mark,I was diagnosed with BFS in 1991. Then my main symptoms were muscle twitching, multiple sites and virtually 24/7, muscle fatigue, cramp like feelings particularly in my feet and exercise intolerance which really affected my thigh muscles. I have had weakness in my legs, arms, throat...

Hi Andy,I have had this problem for 20 years+. I first noticed it when I was in a sauna after a swim. I could see my calf muscles literally twitching, almost rippling under the skin. It freaked me out. However, 20+ years on and it still happens. I have learnt to live with it. I still swim...

Hi Judith,Your symptoms are classic BFS. The search function on the forums can be very helpful and reassuring when you see how many members report similar symptoms.I have been experiencing BFS symptoms since 1990. I have in the past convinced myself that I was suffering from a variety of...

Hi David, Sue is absolutly right, this is classic BFS.I experienced very similar symptoms to the ones that you report back in 1990 and I have had BFS sine then. If I could replay my life I would change the way I reacted at the time. In a nutshell I panicked. I spent so much time on endless...

I get this all the time and I have learnt to live with it. I also get twitching in the ear so sorry to disappoint on that front. The stomach twitching is annoying but it won't do you any harm.

Hi CollsBased on my experience of BFS - yes is the answer to your question. I get aching as well as fasics and it can really drag you down. Stress aggravates my symptoms and even though I have had BFS for over 20 years I still sometimes wonder if it’s getting worse. In truth it never is but the...

Hi Steve,This was like reading about my own experince 19 years ago. I was very worried, speculating about my early demise through *@S , MS or some other horrible disease. Endless visits to Neuros and many tests. EMGs are OK and a good Neuro will give you his/her opinion as the test is carried...

Hi Carlos,I agree with Krackersones, your post was spot on, I look forward to reading a similar positive post from you in 12 months time. I'm still here 19 years on from diagnosis with BFS. Stay positive! :D)

Hi Kit,Great post, sometimes we just need to do some straight talking about BFS (as unpleasant as it can be for some).Keep up the good work! :D)

Hi Anthony,I sympathize with your experience. I was diagnosed with BFS in 1990. I went through the emotions that you are experiencing. I didn’t believe the neurosurgeon and even years later I still thought that I had got a horrible progressive illness. However, I have learnt to live with the...

Hi mamakarenYou don’t have ALS; sounds like you have classic BFS. I really sympathise with your situation and remember having the same thoughts. Have a look at the detailed posts about ALS and you should be reassured that it doesn’t present in the way that you describe. Try not to worry too much.

Great news Sushi,My symptoms mirror yours and at times they can be scary. Posts like yours are very reassuring. Well done and good luck

Hi there,I think that the symptoms you describe are classic BFS which in my case gets worse when I am anxious. I have had periods in the past when I have been twitching constantly for weeks. It grinds you down if you let it. My consultant neuro diagnosed me with BFS a few years ago. My advice...

Hi Mark,Looks like you have had some interesting posts back to you original. I just wanted to add a comment made my neuro when I saw him the other day. My CK was 285 and I was worried that it was too high. When I mentioned it to him he said "Personally I think that the international scale for...

HiIn the 18 years that I have had BFs I have had throat twitches. They are unpleasant. I know that it is easier said then done but if you have a clean EMG try to let it go. I have got myself screwed up many times over the years and I am only now really accepting my condition and living with it...