Recent content by pizzatana

  1. P

    Questioning if it's BFS or ALS

    Hi everyone,just want to tell you how you can get f***ed by coincidence or by searching too much:Some my have read my few posts recently... Sometimes I felt bad or scred or down because of never ending and new symptoms that began over a year ago (contrary to the general tendency I am not scared...
  2. P

    Face Tingling/Itching: Help!

    I have the same thing (see my post "numbness") and have head-MRI again on monday (it's a long story, WHY this MRI is done and does not affect your symptoms).
  3. P

    Spider Bit Dreaming - Experiences?

    Hi,I allready read some posts about that phenomenon... I wonder how many of you experience this and how often. And for the ones who have this symptom: Do you take any medication (SSRI, Mg., etc.)? One time (some months ago) I was dreaming that a spider bit me in my left hand; As I "woke up" I...
  4. P

    What is Causing Abdominal Reflex Loss?

    I know what you mean and basically you're right, of course. On the other hand I had allways been able to induce this reflex by myself, but not anymore since yesterday. Something feels wrong... But maybe it is really nothing. I hope so. Thank you anyway ;)
  5. P

    What is Causing Abdominal Reflex Loss?

    Well, I am actually talking about "something else". The abdominal reflex causes a spontaneous contraction of the muscles when you scratch the side of your tummy with a toothpick or so. It had been there all my life and now disappeared...
  6. P

    What is Causing Abdominal Reflex Loss?

    Well I don't really know what to ask, but somehow it went to a new level for me because since 3 days or so my twitching dropped to 5-10% and I noticed some numbness in my face and somehow on my belly, too. So far so good, but also I noticed my abdominal reflex is gone. It has allways been easy...
  7. P

    Updates on BFS Symptom Control

    Well, that is in detail (except red bull ;) the things I noticed!Caffeine, Sugar, Citrus fruits. And especially some (not self-made) "cake"-like things with some special chemical ingredients.Try also magnesium, even if your blood level is fine. You might have to get used to it (stomac problems)...
  8. P

    Numbness Sensations Everywhere?

    Can anyone relate to (real) numbness sensations anywhere? I mean I am now dealing with the twitches and aches everywhere for over one year now, have been checked many times with "almost no" result but during the last weeks it (the fasciculations) seemed to flare up in / on my face and since...
  9. P

    Back After Extended Absence: Paxil Withdrawal

    I agree with BOSTER. Values up to 500U/l are "slightly elevated". Only if it get's higher they slowly start beeing interested in it.One thing that might help understanding the "CK-issue": Neither is CK produced by a desease nor is it some kind of "poison". All muscle cells are "filled up to the...
  10. P

    Back After Extended Absence: Paxil Withdrawal

    CPK (CK-NAC) of 359 is a joke and normal for the syndrome dicrussed here. There's a good chance that your GOT-value (usually liver value, but also muscles) is raised as well, isolated from GPT and GGT.Here some values for comparison:Bruise: 500Needle-Injection (shot etc.): 800Sore muscle: 1000...
  11. P

    EMG Results and BFS Anxiety

    Depends.You can see twitches if the muscle around the needle twitches.My first (after 6 months) EMG didn't even show twitches. My second (meant to be as 1-year-last reassurance) showed 'strange things' in the main twitching spots (leg left), but nowhere else.It like saying "temperature on planet...
  12. P

    Twitching phases followed by pain phase...?!

    Hi,I wonder if someone experienced and noticed the same thing...Some month ago when I was sitting in front of a doctor -again- told him that right now the twitching seems to be much less intense, however I have some pain (so many different kinds) instead. Normalized again during the following...
  13. P

    Getting info about Biopsies After EMG

    Hi,has anyone of you had a biopsy yet and can tell me somethign about it?Reason:After 1 year of all the twitching, fatigue etc. I had a second EMG (I wanted to have it done to finnally "close the file" and accept it)... Well, unfortunately it showed some slight change in muscle cell structure in...
  14. P

    Elevated CK Level: Experiences?

    I have high CK, too.Some time ago I wrote a little explanation for this:CK represents the amount of muscle-cells dying / damaged etc.. There is a constant turnover (that's why 160 U/l for females and 190 U/l for males is a completely normal status). The good thing is that muscle cells regrow...
  15. P

    How Common are Floaters in BFS?

    Everyone has floaters. Even embryos! They are nothing more than coagulated proteins swimming in the jelly of your eyes. They become more the older you get but the brain removes them from your vision as it does with the blind spot. Look into the bright sky (no clouds) and don't move your eyes, so...
Back
Top