Recent content by NadeshotSabinReyn

I've had BFS since 2004 and am now experiencing new symptoms. The balls of both feet are quite painful. I've always had foot cramps and tingling feet, but the pain in the forefoot is new. I'm going to a podiatrist next week. I'm wondering if the pain is simply BFS expressing itself in a new...

Does anyone have tips for how to minimize symptoms of exercise intolerance and increase endurance? Things like diet, meds, supplements, even the optimal time of day to exercise?

Anybody have some tips on how to cope with exercise intolerance? Like, when it might be best to exercise during the day, or meds/supplements one can take, in order to boost endurance and minimize post-exercise exhaustion? Because of BFS, I can swim maybe 30 minutes and walk 50 at a stretch, but...

I've had Reynaud's Disease for about the same length of time as BFS, since 2004, and I'm wondering if there's any link between the two. Now that it's winter, the Reynaud's is giving me a hard time: a lot of cold hands, tingling finger tips and blanching of the skin. Since this disease is caused...

I have had bad TMJ since 2009. It went away for a while and then returned a few weeks ago, with major spasms and pain in the masseter and temporalis muscles, which worsen when I have coffee. I have BFS, too, with all the usual twitching throughout body, exercise intolerance and the like. But the...

Here's a link to a study about LDN that's worth reading. Jury is still out on effectiveness, as proven through large clinical trials, although pilot studies promising for treatment of pain in fibromyalgia.

I have BFCS symptoms system-wide, as do many on the forum, but one cramp is really unusual. Often times when I yawn, the strain provokes a howler of a cramp in what I suppose are the muscles of the neck that are involved in chewing and movement of the tongue. I have to massage the neck to get it...

I experience frequent tremors and weakness when I ask my hands to perform fine motor functions and I think it's associated with BFS. I have been offcially diagnosed with it. Does anybody else experience anything similar?

Has anyone used quinine to control cramping? If so, then with what results? In what quantity and what frequency? Was is prescribed by a doctor? Do you have any concerns about possible cardiovascular side effects?

Dear Appletwitches,This link is to one of the better and more authoritative articles about impaired glucose tolerance (aka prediabetes) and its association with small fiber sensory neuropathy. To offer a little comfort, however, my endochrinologist, the head of a diabetes clinic at a major metro...

Dear Sean,Thanks for your candid and helpful post. I, too, wonder about the triggering event, and in my case for a long time thought it was the use of Levaquin, but given people on this board have all reported many, many different potential triggers, I'm more inclined to think BFS has a genetic...

I liked the recipe exchanges, but would really like better to hear about original topic if you guys have some experience to share. Thx! Enjoy the culinary delights.

Does anyone notice any changes in BFS symptoms after drinking alchohol? Have your docs given you any guidance on alcohol intake?

Does anyone notice any changes in BFS symptoms after drinking alchohol? Have your docs given you any guidance on alcohol intake?

I've had BFCS since 2007, but not until lately have I experienced severe pain, sharp aching in my calves and forearms, and I am hoping some forum members who suffer similarly might be able to recommend pain meds that work. Thanks for any help you can offer....