Recent content by morgan100

Thanks Sandra. I'll try the Camlyme website again. I have not yet been sent the link to the forum... I had not heard of a Dr in Toronto.

The link I gave you said the doc in NS is treating people, but who knows to what extent. He's easy to find on the web, just google his name. It can't hurt to call him and see if he can help you. I'm frustrated... at least if I have BFS there is the opportunity of this all passing by what...

Sandra, if you have been diagnosed by a lab with lyme, I would be demanding treatment. Ask for another infectious disease Dr. Even though the treatment given here doesn't fix it, IV antibiotics will slow down the process. The only Doc I know that is left treating in Canada is from Nova Scotia...

Thank you for your response. The docs are covered under the health plan, but the testing and treatment for lyme is not suffient here. Many people here are tested with negative results, but when they go via the US for treatment to do a western blot test, the tests come back positive. The cost...

I'll try and be brief. I was diagnosed with BFS a few years ago. After many tests, and two neuro's, the diagnosis of BFS was reached. Over time, I put my fears away, I found worrying about twitching was causing anxiety, which in turn, caused me more symptoms. I accepted the diagnosis of BFS...