Recent content by HatteryHippyHousewif

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    Returning After Long Lurking: Familial MND Questions

    Quick update - Had Nerve conduction and EMG today. Both clean, very happy girl right now. I know there is something going on with me, as mentioned earlier neuro said BCFS and GP also thinks may be fibromyalgia. To be honest either of these are manageable liveable conditions, they may be...
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    Returning After Long Lurking: Familial MND Questions

    Thank you for the replies. I don't think the neuro said anything in the way of relieving the cramps.......to be honest I don't think I took much in after he said BCFS, was too busy trying to restrain myself from crying and hugging him!! I will speak to husband when he went in because he took...
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    Returning After Long Lurking: Familial MND Questions

    Hi everyone, I dont know if anyone remembers me, only posted once a few months ago. So by no means an active user.....but certainly an active lurker!!! My post was about the same concerns everyone on here has, my exception was that my mother died from MND when I was 12 and she only 36. The...
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    Living with BFS: My Story

    No other members of the family with MND, my maternal grandfather died before I was born, he had a tumor. My maternal grandmother died aged 72, my mother has 1 brother who is nearing 60 and is in good health. As I said I have no weakness, grip problems, foot drop etc. I am a long term anxiety...
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    Living with BFS: My Story

    Thanks for your reply. I did mention it to my GP but as there was no wider history she thought there was no need........now sitting here in full blown panic. I genuinely feel I am going mad most days.The only thing that is keeping me somewhat sane is that my mother progressed so rapidly. She...
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    Living with BFS: My Story

    Hi,First of all I want to say that this site has been like a life line to me recently, whenever my anxiety and fears kick in the reassurance I read on other posts is immeasurable.I have been twitching for about 6 months now, all over, from big thumpers to fine invisible ones. Eyelids, calf...
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