Recent content by Haileyside

Just don't forget that Beta-blockers can have side effects like fatal heart arrythmias. They should be used carefully.Carlos

Hi. It has been a long time since my last visit to this forum. It has helped me a lot in my first years of BFS, when I, like most people who come here, was scared about having ALS.Of course, I had all the tests and saw several neurologists. No ALS. I'm not free of having it someday, like...

Hi.Just to help reassure everyone, especially the newbies who are still struggling with the ALS-fear: I just completed 6 years with BFS (it all began in August 2008). When I went to the first doctor (a neuro-surgeon), I didn't know much about ALS and I didn't know about the possible relation...

Hi.I passed by to say hello and to say that I'm ok after more than 4 years with this. It was at the end of August 2008 when it all begin.So, for the newbies: see your doctor, make your tests, and trust them. After that, the weird things are normal. It's BFS. But of course, you can find great...

When I exercise I tend to have much more twitches - that's when they can be annoying. Today I forced my legs a little bit and, now that I'm sitting at the computer, the twitches on my left leg don't stop. Sometimes I ask myself if continuing exercise will make things worse and eventually lead to...

Like MarksmanS said, you would be dead with bulbar ALS. Even if you were not dead (you would, of course) you wouldn't be able to sit at the computer and write. You also would be very sure that you had it (and your doctors too).Sometimes fatigue, bad sleep or even some anxiety can make you speak...

Hi. Does anyone know what happened to Martin (username Silverbullet)?I received some pm's from him some months ago. Now, looking at his messages, I found that he is no longer registered and, searching in the forum posts, his messages aren't there anymore. Any idea of what happened?

On the left side. They showed up on my first visit to a neurologist (actually, a neuro-surgeon), a bit more than two years ago; but the neuro that I saw afterwards (after having done a MRI) didn't seem concerned about it. Neither did he in my second visit (one year later) nor the seond neuro I...

No, not about that, because I had other concerns the last time I visited him (it was a neuro). But I had brisk reflexes. Usually (well, the few times it happened) it has some relation with fatigue or with feeling "brisk". Probably your doctor is right. Anyway I will talk about that to my neuro...

Hi!Does anyone have this kind of involuntary movement of the jaw, which bites the tongue? I have this, not very often (maybe twice a year), but it's scaring.Carlos

Hi.In the last 10-11 days I've been having some pain in my left arm and fingers, which comes and goes. First (last week), I was affraid it was a heart attack; I went to the doctor and, fortunately, it was not (I talked about that elsewhere).Anyway, today I went to another doctor again (not my...

Hi everybodyI've been dealing with a lot of anxiety about heart problems; that's because I tend to have scary PVC's from time to time (I give you a bit of an account of all this in ), I have some sharp (but mild) left chest and jaw pain also from time to time, and I have several people in my...

Hi.Does anyone experienced some kind of relation between fasciculations and abnormal heart beats, like extra-systoli or PVC?Do you think our nerves, capable of doing this kind of play with our muscles, could affect the heartbeats or the heart's nerve conduction?I'm asking this because I tend to...

Actually, I recently (about two weeks ago) began to take two coffees again and I was happy with that - with no increased twitching nor soemthing similar. Once I even had three, and I was ok, even for sleeping issues. So, please, have your beer and your coffee: you will feel better, not worse.Carlos

It is not weakness. With real (worth worrying) weakness you simple are not able do move anymore. It's normal that the muscles are tired and they tremble when you make an effort that they aren't used to do. I had this kind of thing (I have it from time to time) but my muscles still work and they...