Recent content by Grigoli

Sorry, John I really did not answer your question, do I have BFS or what? I have no clue! And I am getting to the point that I don't care as long as it does not kill me or effect the quality of my life. Like I said it comes and goes, I am suppose to see a neuro next month. My GP is sending...

Sorry, John I really did not answer your question, do I have BFS or what. I have no clue! And I am getting to the point that I don't care as long as it does not kill me or effect the quality of my life. Like I said it comes and goes, I am suppose to see a neuro next month. My GP is sending...

The thing about my leg is that it comes and goes, I can go a few days feeling great and then a few days later I feel like my leg is going to fall off. Since it does come and go and when it goes I feel just fine, I am trying to believe that it should be fine. I think that the less I think...

Me again! I did want to comment about your statement of staying off the internet. I saw something yesterday posted on the net asking "Is the internet turning you into a hypochondriac". They went on to give some very simple yet sobering information, which went something like this. A doctor...

Thanks for the words of encouragement. I am sure you know how much they help. The people on this site are wonderful! How great it must feel to be the ones who are offering the kind words of encouragement and positive feedback. I don't know where I would be now without it. Someday I hope to be...

It is so hard to stay positive when you are having a "bad day" or days. Some days I am convinced I am fine, others I am very worried. I still can't wake up without the first thought being about how my body feels. Yesterday my left leg ached all day the muscles hurt from my groin down to my...

Thanks for the suggestion. I live in the Minneapolis, Minnesota area. Of course Mayo Clinic would be an option but they are about two hours away. Not that it wouldn't be worth it to go there, but you really can't get in without a referral. If anyone knows of a doctor in my area, please let me...

For those of you that have seen a Neurologist, have you found them to be aware and knowledgeable about BFS? I saw my GP today and she suggested I see a Neuro for peace of mind. She thinks I am fine, but drew some blood work just to check for this and that. I have an appointment with a Neuro...

Okay I thought I was over it, but I just read that ALS can have muscle cramping, I did not know that! For a last couple of weeks, in the morning before I get up, if I move my feet a certain way, I will get a cramp in my calf. Does not last long but if I dont move a certain way I don't get it...

You are so right, so I will work on that. I need to believe that I am strong, healthy and that I deserve to be happy. What I suffer from most is fear. I have been so blessed with so many wonderful things in my life and I am so afraid that I am going to lose it , that I am not enjoying it now...

Well last night I went home and sat on the couch. My left leg started to hurt like crazy mostly on the outside. I started to freak out, but then I just started to tell myself I was fine. I walked around and felt twitching but no weakness and hopping around on one foot at a time like an idiot...

Sue, you help me tremendously! Consider yourself my personal savior! I guess my problem is that my GP spent about 2 minutes with me and then told me I was fine. Don't want to bore you but I think it goes way back for me. I developed a heart condition when I was 11 years old. I would go into...

I am trying so hard to believe I am fine. I keep going back and forth between ALS and *S. Once I am convinced I don't have one then I think I have the other. My doctor is just blowing this all off to anxiety. Which I have plenty of. I don't know if I should push to go to a neurologist, or...

I am still worred about *S and tingling. I had some tingling in my hands and left foot for a couple of weeks and then it went away for a couple of weeks. Now it is back, for the last couple of days and what scares me it that my calf feels funny along with with tingling, like something is on it...

Maybe it is just a bad "habit", we condition ourselves for so many things and the irrational thinking is one of those things. I tell myself, if I can make myself ill, (to the point of nausea from fear), then maybe I can make myself feel better. So I try not to go there, if you will. It is...