Recent content by Gracer

Hi Dman,migraines and BFS are as jin and tonik ;) many of our fellows had them according to their own accounts, and often it is limited to auras, not to migraine itself. I mean we seldom complain for painful manifestations, but rather often for optical auras, for example.If vertigo comes and...

Nope you should not be in panic.Yes reversal neck curvature could affect neurological function severely, but this is only one end of a range of possible consequences. And believe me hardly one could miss that as this implies significant loss of all four limbs strength and it would be seen at...

For me it seems pretty well like BFS with all strange things including joint cracks. I always wonder if it is a real symptom of just a sign of extreme attention to our body functions... Neck disk troubles can give a constant headache of course, as well as cause partial face numbness feeling.I...

Holy god, Tobes, how the story like yours may harm???I am GAD sufferer since 6 years old... and I would like to say that especially in the light of several cases happened recently (at least one when our fellow member was 'granted' with a bad diagnosis) your story is a huge support for everybody...

So Tobes, thanks for sharing this story - it seems to be incredible but I am sure it is not unique - doctors make mistakes, lack deontology practice (e.g., a special courses how to behave with patients in, well sensitive situations) etc. etc.I think it is worth to be rearranged in a more solid...

however i was not a witness as Christi, I still managed to understand that the story would be with a happy end because Tobes said it at least twice in his origian post :))))I think this story (Tobes, please continue it!) would be a good point of care for our fellows who a) might be misdiagnosed...

Hi Domchronic neurogenic changes in legs are not distinctive after approx 25 yo due to the fact that leg axons are the longest in the body and thererfore till 25 they already have certain damage. That is why doctors usually do not rush in doing leg EMG - it would be MOST PROBABLY dirty and this...

jason,therer is a sticky post here called "email from prof Carvahlo" and this in fact is the email interview taken by one of the fellows from one of the key European ALS specialists Professor Mamede Carvahlo from Portugal and a bit of answers form major Geramn ALS specialist Dr. Eissen. read it...

Clean or at least not specifically pathological EMG, normal clinical exam, lack of neurological deficite 'de novo' (becasue you have a bit due to old trauma, this not to be accounted), and blood tests may exclude toher reasons for twitching like thyroid etc.Wish you a good New year then.

Hi,nope EMG is not like a coin. It may also stay on the rim: you have traumas, local deneravion, etc,., so called dirty EMG BUT NOT ALS one. And that is most often position,as a person having experience of clinical weakness after trauma and surgery, you must clearly see the dofference. the fact...

oh RainCat,so sorry for your overall conditionyep connective tissue disorders often result in aneurism and valve regurgitation, this is really typical for one of EDS types...

burning, shooting and stabbing pain is a classic mark of neurogenic pain. not neurodegenerative!!!! in ALPIM P means pains - fibromyalgia, bowel pains, shooting pains, etc. - emerged without any visible inflammation.it is becasue our body has lower pain threshold and often because the central...

try to find Geshtalt, psydrama or narrative therapy. they are not covered with insurance but behavioral therpay just get you TRAINED to cope, and this is LAST STEP, first step is understanding what the hell is going on. For me Geshtalt therpaist was the best. He never suggested any reason for my...

Germanit is very sad to read that right now your situation looks so bad.but if oyu can hold your 7 years daughter, this is not ALS definitely. You got fat atrophy which is very common. You were cleared three times from ALS specialists. You had a hisotry of nervous breakdowns before. I do not...

EMDR is a good technique, I know it. Hope it would help.