Recent content by FernFinnegan

Yes, there is activity on facebook, some old timers from here, and many new people who couldn't get approved for this site because the owner stopped responding. Activity really ebbs and flows, but you can always find someone.

IT - to me this is a hopeful thing, this is probably what has caused your bfs all along. So don't fear, instead take heart! It is very possibly an ANSWER - something we all want. Good for you!

I had something like this almost 8 months straight 24/7. Then it went away for months, but occasionally could feel it faintly. Now it is back, still not as strong as before or I'm better at ignoring it. Search "buzzing" and you will find it here! How many pages is the question? All the best!

I am just over three years in as well. I have cramped from the start, but still have a new symptom. Just when I thought I've had them all - now it is the shortness of breath, sort of holding my breath (unconsciously) and then gasping. It is the constantly moving and changing nature of bfs...

Trent,My doc at Mayo was going down the CREST road. Initial blood tests negative, but I do have so many of the symptoms. I figured I don't need the diagnosis anyway. Maybe I'll go for more testing in the future, but not now. Do a search, you will find others here with it, or family members...

hey TwitchyMD, what do you mean those syndromes are more common in the last years? I too have the wheeze, throat clearing like mad the past couple months! Thinking about getting an xray too. I have asthma, but using the inhaler way too much lately and it seems less effective. Always feel...

Super interesting!!! I have used Some of those supplements. I am better. Whatcauses this problem and where did you find the info? Thank you!!

Wonderful post, Gracely. I cannot disagree with a single word there. I like to say I threw as much energy into recovering as I did into worrying. Eventually it helped. For anyone unfamiliar - google "schedule worry time" - incredibly effective technique along with tracking symptoms and...

Hawk, what helps most for me is time, acceptance, distraction. I believe you will start feeling better soon. I noticed a pattern here that many start to improve after 18-20 months. That is the case for me. I still have issues and now discovering TMJ I didn't even know I had may be a...

Hi Bibi,Nice to see you. Are you still on the FB site? Prior to bfs I had a lot of pain following a teeth cleaning. It was so unsual. Thought perhaps the tool and introduced an infection in my mouth. Also, prior to bfs, I had "black hairy tongue." Gross!!! Right? I know. It was caused...

For any future searchers -- I have TOS also

Hey Scoby, what is carcinoid? I did have 2-3 incidental cysts on ct between kidney and liver tests from two years ago. Dr. never even mentioned them to me, I found out when I read the radiology scan 6 months ago. Liver tests are fine, kidney not as fine but not dire either. Good luck!

Gracely - Are you on the Facebook site? Please join! even if you only have an account for bfs, as I think some members do. Is MikePi really just disinterested? I actually thought he may be dead.

Thanks for checking in! Really liked your #4 point!

I don't know if I'm hypoglycemic but likely have highs and crashes since I'm a sugar addict. I'm on the wagon as of NOW August 1, 2015. No more candy for me