Recent content by Ernzo88

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    EMG & EEG Scheduled for 18th Dec

    The Neurologist said that I would get my EMG done in about 6 weeks but I received a letter saying that I am to have my EMG & EEG on the 18th Dec.When I saw the neurologist I mentioned the limb (right leg) and the main areas that were giving me trouble,which at the time were the ankle and the...
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    Neurology Appointment Outcome

    The thing is both systems have their good and bad points. Yes the NHS is free,but it is run very inefficiently, by inept individuals/departments and when mistakes are made,of which there are many,those responisble never get punished which is criminal. Then you have the US where what level of...
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    Neurology Appointment Outcome

    They are making me wait 6 weeks as that is the way the NHS works. I would hope that if she susepcted something v.bad she would have sent me asap,but knowing this country you can never say. Could quite possibly turn out that there is something wrong. Obviously the 6 week wait is not something I...
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    Neurology Appointment Outcome

    Well I am back from my neurology appointment and this is what happened. I explained to her what had been going on and how things had progressed. She then asked a few questions such as if I had other symptoms such as headaches,trouble swallowing etc. I then stripped down to my boxers and she did...
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    Questions to Ask at Neurology Appt

    Tom I really don't appreciate you calling me a liar,especially in the way that you did. I have already said that in comparison to others I do not twitch as much but when they do come (mainly when I am lying down) they are twitching every few seconds and that this is concentrated in my right leg...
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    Questions to Ask at Neurology Appt

    Doug I know that the odds under normal circumstances would be in my favour but who is to say that i won't be that 1 in 10'000 (or whatever the odds are,don't have the energy to recheck). You have had something diagnosed,quite often having nothing diagnosed is actually worse than having something...
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    Anxiety-Filled D-Day: 24 Hours

    Well 9:30am tommorow is D Day and I am abolutely going out of my mind with worry. Given my symptoms and how they have progressed I really cannot see it being anything other than the thing we fear. I just know that she is going to do the Babinski test as well as the other one when they stretch...
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    Questions to Ask at Neurology Appt

    As I said Basso I know where you are coming from but its hard to accept any sushine when your experiences mean that you don't even know what sunshine feels like and if any were to come along I would not identify it until it had long passed me by. You are trying to put a positive spin on things...
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    Questions to Ask at Neurology Appt

    Alien i know what you are getting at & whilst i would admit i have "issues" they have nothing to do with what is going on. They were going to be "addressed" until I became ill with this and had to postpone.I mean I have just tested my balance and whilst my left leg is fine I am losing my balance...
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    Questions to Ask at Neurology Appt

    Unfortunately if you try and "Demand" a test over here,they get very touchy as they don't like to be dictated to and tend to only arange scans and the like if they and only they think they are neccessary.I have not showered due to both my physical symptoms and because I just don't have the...
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    Questions to Ask at Neurology Appt

    Basso how the hell can you say I haven't noticed any atrophy? You can't even see me! I am telling you what I see with my own two eyes,whether you believe that or not is another matter entirely.Just because nobody on this site has developed *** it does not mean someone won't. Joining this site is...
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    Questions to Ask at Neurology Appt

    The reason I am up (its now 2pm) is because the symptoms are making it very difficult to sleep hence the need for tiredness to overcome the symptoms. Yes anxiety may not help but that is a consequence of the symptoms getting worse,not the other way round. I have checked about Restless Leg...
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    Questions to Ask at Neurology Appt

    The thing is Basso is that as many people have mentioned,*** is a disease of "Weakness" not "Twitching". The twitching only comes after weakness and that is how symptoms have progressed in my leg:-Strange feelings ---> ache ---> increasing weakness & balance problems ---> huge increase in...
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    Questions to Ask at Neurology Appt

    I know you both mean well but given the nature/location of my problems,the likelyhood of it being benign has decreased and as a result the chances of it being *** have increased. Whilst the negative signs vastly outweigh the good signs,i find it very difficult to see it being something benign.I...
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    Questions to Ask at Neurology Appt

    I have my neurology appointment on Tuesday and would like some input into what questions I should be looking to ask. If anyone reads my other recent post (any single limb twitchers) they will get an idea of the current state of play,however I have been noting my symptoms/changes since they...
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