Recent content by charlielover

Sir_Trouserz, I really don't care to fight. - obviously you are just trying to be hurtful and have never read any of my other earlier posts on this site.

stevenpaulo, So what credentials do you have to be such an authorityon everyone's diagnosis, i.e. medical degrees, clinical trials you have conducted etc etc???

Jenn wrote: ...look at the meds these so called Dr.'s stuff down your throat for anxiety.... _________________ Jenn, don't get angry...I just wanted to say in regard to that comment that that is the whole point in a way- with bfs/pnh its seems like a wide variety of meds are suggested all over...

stevenpaulo, Why do you come off as though you are the complete authority on this based on your own experience and a few studies?? Your answers are very short and undetailed, not very reassuring and quite unimformative. ..its as though you feel that you don't have to explain things further...

Kevintwister, Thank you so much !!! I think I need to break from here too, but I will always be grateful to all who helped and supported me through my earlier fears which were quite frightening. God bless everyone here! :D) I hope to meet you all one day (in the much much distant future ;)...

43RichyThe43rd, It runs in my family too- I have 3 other twitchers in the family/relatives. Not so uncommon-

Hi, I think everyone gets these. I would say that they are very normal. Even my family members(kids) will mention weird little transitory pains etc- I feel that even stress can especially aggravate or prompt these strange little symptoms, ...anyone under a lot of anxiety over their health...

Anyone?? Is Neuromyotonia/Issacs difficlut to distinguich from bfs(benign)- Is it important to distinguish(due to the suggested cancer element) ? If it is Neuromyotonia is it a huge risk for this specific cancer?? Should neuros be alert to this- why don't they mention it- There are such...

Swift_TaySwift20, Are you diagonsed with bfs or neuromyotonia? Is it easy for a neurologist to tell apart? It seems worrisome to me as a bfs-er that you were tested for cancer in relation to your syndrome. How can I be certain that I only have bfs, a benign condition? This Isaac's syndrome...

Thank you for all the advice. I will try it. Guess I'm not so unique in this symptom,

Onewaylife4u2, I totally agree with the terms 'focused psychosomatic form of anxiety'. You said it well. If you look up anxiety there are many real confirmed physical symptoms attributed to anxiety. Furthermore , our minds are quite powerful. Speaking for myself and own experience, I once...

:D) :D) :D) happy for you

disease: a condition of the living animal(person)....that impairs the performance of a vital function: sickness, malady. syndrome: a group of signs and symptoms that occur together and characterize a particular abnormaltiy. (both from Websters New Collegiate Dictionary) To me, a syndrome...

If virtually everybody gets these (twitches) at some point, as I've read over and over , than why are we all so worried once given an official (or unofficial) diagnosis of bfs/bfcs ?? That is my whole point- why do we need to find a cure? Certainly I believe sleep, eating well and exercising...

Val, calm down- yes, I remember reading posts here saying that an individual , in a state of severe panic over a perceived serious illness, suddenly seemed to become more aware of others with the disease which is feared- Whether it be ads, articles, shows etc... that one suddenly seems to be...