BobJazzy's latest activity

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    BobJazzy replied to the thread New to Forum, Testing - BFS?.
    May 14, 2011 was the first day I noticed fasciculations all over my calves. Here I am 7 years later. Proof that this is benign. The...
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    BobJazzy replied to the thread Dealing with Inner Twitches.
    I hear ya Cro.Can I ask, how often do you feel them above your waist? Mine used to be primarily in my calves with random pops...
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    BobJazzy replied to the thread Dealing with Inner Twitches.
    Will,You just described my twitches perfectly. Both my deltoids 'rumble' with twitches all day long. I usually can feel them both...
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    BobJazzy replied to the thread Dealing with Inner Twitches.
    Hey Will,You may have come across my posts on here. I've been twitching for 4 years. In the first year, it was nonstop in my calves...
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    BobJazzy replied to the thread Twitches in Both Elbows?.
    Its gotten progressively worse around my elbows, especially my right one. Check it out these days....
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    BobJazzy replied to the thread Twitches in Both Elbows?.
    Just bumping this post. In 2012 I said that I didn't think my elbows twitching was going to stop. Here we are in 2015 and they are...
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    BobJazzy replied to the thread What Is ALS's 'Mystery Phase'?.
    I just read Greg's post about his visit to the Mayo Clinic yesterday. Fantastic post, better than my post from 2012 when I visited the...
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    When BFS first started for me, I freaked the first time I had a twitch in my shoulder immediately followed by one in my thigh. Then...
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    peripheral nerve hyper excitability is a benign condition. I tested positive for it by the RNS test as others have mentioned. I have...
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    @rutra80, I manipulated your words? I'm sorry, I thought I read "ONLY TIME WILL SHOW what is on with you. 3-5 years." Did I not?@Robj...
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    JoshSon,I completely agree with you. After you listed Eisen's 1st study and Eisen's 2nd study, you could have also listed an email to a...
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    Robj-I don't fully understand why you are going about things the way you are and I agree with the others that we don't have a single...
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    BobJazzy replied to the thread Twitching for over 2 Years.
    That is absolutely nothing to worry about. I get those types of tongue twitches all the time and was able to show it to my neurologist...
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    Its this "prove to me I don't have ALS" attitude that will keep a person here for 7 years, or even 20+ in some cases.I haven't been on...
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    For what its worth. I have been diagnosed with CFS but you haven't scared me a bit so don't worry. I'll listen to my own neuro instead.
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