Recent content by arianabunnell

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    Living With BFS & Chronic Knees

    Hello...thanks for the information about trileptal and topomax. I'm so sick of the side effects of Rx drugs. I am intrested in persuing more natural things. I have an appointment with radiology tomorrow to have a bone scan. They think I broke my foot...a year ago? Anyway...I'm in pain and I'm...
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    Living With BFS & Chronic Knees

    Ok...retaining some water...but doctor reassured me it should go away. I've dropped back to 150mg am/150 pm and started taking tegretol twice a day (100mg each). I've taken tegretol before and while it helped with bfcs it never completely stopped it. I was taking 200 twice a day. I still get a...
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    Living With BFS & Chronic Knees

    Today I'm having HUGE flinching. It's awful! I was talking to a friend on the phone and flinched big enough to toss the phone. This flinching is NOT ok. I need to know if it's part of the bfs or the Rx. I had some flinching before, but not like this. I've also noticed some water retention in my...
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    Living With BFS & Chronic Knees

    Ok...I'm now taking 225mg in the morning and 225mg at night. The doctor gave me 75mg caps. so I take 3 of them. Anyway...I don't have any twitching or spasms but now I have terrible flinching! I'm also still VERY sleepy! Luvmychihuahua...how long did it take for this side effect to go away? I...
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    Living With BFS & Chronic Knees

    Hi iluvmychihuahua! Yes..75/75. I've had two doses, one last night and one this morning. So far...spacey...sleepy are definate! You say it can be increased? Is this an Rx that needs to be increased slowly...like some anti-depressants? I wouldn't mind trying the higher dose, and my doctor is...
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    Welcome! Benign Fasciculations Explained

    Hi Erika and all, I remember finding this website and reading about myself on the net. I laughed...I cried...I was angry. I laughed for joy...sounds silly huh? But I finally found out what I "had". Up till that point even the neuro was trying to convince me that my pain was Fibromyalgia...
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